If you haven’t heard the story of Alex Spourdalakis then I suggest you prepare yourself. This is reality. It is infuriating and heart wrenching. These things CAN happen and they DO happen. Please PLEASE contact the following-
Joint Commission customer service line at: 630-792-5800.
Vice President and CNE, Paula Hindel 708-216-3802
CEO Larry M Goldberg 708-216-3215
Tweet the hospital at @LoyolaHealth.
See the bottom of this page for a sample complaint you can use via https://www.facebook.com/ljgoes
TELL EVERYONE AND ANYONE YOU CAN! What if this was your child? Please help this family!!!
Links to the story-
The case of Alex Spourdalakis Day 21– http://www.ageofautism.com/2013/03/alex-spourdalakis-loyola-medical-center-ineptitude.html
DAY 23-Chicago Hospital Locks Down Autistic Patient (thehandiestone.typepad.com)
Sample Complaint letter:
Jill Rubolino Dear Sirs,
I am filing this formal complaint on behalf of Alex Spourdalakis, a 14 year old nonverbal autistic child that is currently inpatient at Loyola Medical Center in room 2243.
He has severe autism and has been kept there, on an adult floor, since his transfer from Gottlieb Hospital on 2/28/2013. He remained in locked restraints to all four of his limbs for in excess of 20 consecutive days, including the days he previously spent at Gottlieb held in an ER bay for approximately 14 of those days, unable to be admitted into a room. His basic human needs have not been met. He has not had any accommodations for his disability. He has not had anyone attempt to provide him the ability to communicate. He has not been held in the least restrictive environment and the frequent assessments for his need to be restrained, as required by regulatory agencies and hospital policy, have not been performed. Not one professional that specializes in autism has examined him. He was kept in locked restraints without any written plan to work towards release. He was denied medical care and intervention by this facility that he was specifically transferred there to receive. His mother has been denied a list of physicians in charge of his care. His mother has been denied a list of medications that are ordered for her child. His mother does not have access to a phone inside the patient room in order for her to access resources. He has not received any medical services other that psychiatric medications, restraint and seclusion since he arrived. He has had a delay in treatment waiting 5 days for an ordered consultative physician to see him and one additional day until he was examined by a specialist for his gastrointestinal problems, the very reason he was transferred to this facility. He has been held in restraints while the physicians have ordered and cancelled this procedure. He is not being provided appropriate foods as he has many food allergies. He has not had access to any specialized evaluations or services from any professionals such as occupational health, speech therapy, developmental pediatrician or behavioral specialist who might be able to facility addressing his disability. He is being denied medical care and accommodations for his disability of autism and his mother is purposefully being separated from him and threatened by hospital staff. His pain has not been assessed or treated. None of the many standardized assessment tools for nonverbal patients have been utilized and his mother was told they staff is “unable” to determine if he is having pain. He has not been medicated for pain. The following patient rights, as outlined by JCAHO, have been violated:
You have the right to be informed about the care you will receive.
You have the right to get important information about your care in your preferred language.
You have the right to get information in a manner that meets your needs, if you have vision,
speech or hearing, or mental impairments.
You have the right to make decisions about your care.
You have the right to refuse care.
You have the right to know the names of the caregivers who treat you.
You have the right to safe care.
You have a right to have your pain addressed
You have the right to care that is free from discrimination because of physical or mental
You have the right to get a list of all your current medications.
You have the right to be listened to.
You have the right to be treated with courtesy and respect.
His basic rights to medical care and accommodations for his disability of autism have not been provided.
Please investigate why this child with a disability is being denied access to medical care.
pics via http://thehandiestone.typepad.com
Unfortunately this story took a turn for the worst. I am deeply saddened by the events I am going to link you to and honestly, I just can’t bear to write about it so here is the link to those of you who are following Alex’s story. RIP sweet boy. – http://abclocal.go.com/wls/story?section=news/local&id=9136005