Autism Agony..What if this was your child? I support Alex!

Autism Agony..What if this was your child? I support Alex!

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If you haven’t heard the story of Alex Spourdalakis then I suggest you prepare yourself. This is reality. It is infuriating and heart wrenching. These things CAN happen and they DO happen. Please PLEASE contact the following-

 Joint Commission customer service line at: 630-792-5800.

LoyolaMedicine.org

Vice President and CNE, Paula Hindel 708-216-3802
CEO Larry M Goldberg  708-216-3215

 Tweet the hospital at @LoyolaHealth.

Sign the petition- http://www.change.org/petitions/loyola-medical-center-maywood-chicago-illinois-provide-appropriate-medical-testing-and-medical-treatment-for-alex-spourdalakis

 See the bottom of this page for a sample complaint you can use via https://www.facebook.com/ljgoes

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TELL EVERYONE AND ANYONE YOU CAN! What if this was your child? Please help this family!!!

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Links to the story-

Philadelphia News, Weather and Sports from WTXF FOX 29

Day 19– http://www.ageofautism.com/2013/03/day-19-loyola-chicago-hospital-locks-down-autistic-patient.html

The case of Alex Spourdalakis Day 21– http://www.ageofautism.com/2013/03/alex-spourdalakis-loyola-medical-center-ineptitude.html

Day 22– http://www.ageofautism.com/2013/03/day-22-autism-agony-at-loyola-u-medical-center-.html

DAY 23-Chicago Hospital Locks Down Autistic Patient (thehandiestone.typepad.com)

 http://www.ageofautism.com/2013/03/weekly-wrap-alex-and-his-mom-autism-and-suicide-and-psychiatrys-hysteria-hangover.html

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Sample Complaint letter:

 Jill Rubolino Dear Sirs,
I am filing this formal complaint on behalf of Alex Spourdalakis, a 14 year old nonverbal autistic child that is currently inpatient at Loyola Medical Center in room 2243.
He has severe autism and has been kept there, on an adult floor, since his transfer from Gottlieb Hospital on 2/28/2013. He remained in locked restraints to all four of his limbs for in excess of 20 consecutive days, including the days he previously spent at Gottlieb held in an ER bay for approximately 14 of those days, unable to be admitted into a room. His basic human needs have not been met. He has not had any accommodations for his disability. He has not had anyone attempt to provide him the ability to communicate. He has not been held in the least restrictive environment and the frequent assessments for his need to be restrained, as required by regulatory agencies and hospital policy, have not been performed. Not one professional that specializes in autism has examined him. He was kept in locked restraints without any written plan to work towards release. He was denied medical care and intervention by this facility that he was specifically transferred there to receive. His mother has been denied a list of physicians in charge of his care. His mother has been denied a list of medications that are ordered for her child. His mother does not have access to a phone inside the patient room in order for her to access resources. He has not received any medical services other that psychiatric medications, restraint and seclusion since he arrived. He has had a delay in treatment waiting 5 days for an ordered consultative physician to see him and one additional day until he was examined by a specialist for his gastrointestinal problems, the very reason he was transferred to this facility. He has been held in restraints while the physicians have ordered and cancelled this procedure. He is not being provided appropriate foods as he has many food allergies. He has not had access to any specialized evaluations or services from any professionals such as occupational health, speech therapy, developmental pediatrician or behavioral specialist who might be able to facility addressing his disability. He is being denied medical care and accommodations for his disability of autism and his mother is purposefully being separated from him and threatened by hospital staff. His pain has not been assessed or treated. None of the many standardized assessment tools for nonverbal patients have been utilized and his mother was told they staff is “unable” to determine if he is having pain. He has not been medicated for pain. The following patient rights, as outlined by JCAHO, have been violated:
You have the right to be informed about the care you will receive.
You have the right to get important information about your care in your preferred language.
You have the right to get information in a manner that meets your needs, if you have vision,
speech or hearing, or mental impairments.
You have the right to make decisions about your care.
You have the right to refuse care.
You have the right to know the names of the caregivers who treat you.
You have the right to safe care.
You have a right to have your pain addressed
You have the right to care that is free from discrimination because of physical or mental
disability.
You have the right to get a list of all your current medications.
You have the right to be listened to.
You have the right to be treated with courtesy and respect.

His basic rights to medical care and accommodations for his disability of autism have not been provided.

Please investigate why this child with a disability is being denied access to medical care.

Thank you,

Jill Rubolino

pics via http://thehandiestone.typepad.com

Unfortunately this story took a turn for the worst. I am deeply saddened by the events I am going to link you to and honestly, I just can’t bear to write about it so here is the link to those of you who are following Alex’s story. RIP sweet boy. –  http://abclocal.go.com/wls/story?section=news/local&id=9136005

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9 thoughts on “Autism Agony..What if this was your child? I support Alex!

  1. This is so unreal in this day and age and makes me exceedingly angry! I haven’t gone to any of the links yet and sincerely hope this situation has been rectified and the hospital, doctors etc. punished for the abuse they inflicted on this child. I appreciate your sharing this so we are aware this does occur even today, most sadly.

  2. No it has unfortunately not been rectified. Last I heard Alex remains in the hospital with his mother. She has a care plan meeting scheduled at the hospital – which, if she does not agree fully to the terms, will mean the removal of her son from her care and his being placed in DCFS. Please share this story!! The more exposure we can get for Alex the better.

  3. Hey there! I’ve been reading your blog for some time now and finally got the courage to go ahead and give you a shout out from Huffman Texas! Just wanted to tell you keep up the fantastic job!

  4. I was recommended this web site by way of my cousin. I’m not certain whether or not this put up is written by means of him as no one else recognize such distinctive approximately my problem. You are amazing! Thanks!

  5. Today, I went to the beach with my children.
    I found a sea shell and gave it to my 4 year old daughter and said “You can hear the ocean if you put this to your ear.” She placed the
    shell to her ear and screamed. There was a hermit crab inside and it pinched her ear.
    She never wants to go back! LoL I know this is entirely off topic but I had to tell someone!

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